Forbes April 20, 2023
When it comes to protecting health data privacy, where do we find balance?
Health and health-related data are fundamental to informing medical innovations and advances that save lives and better outcomes for all patients. These data include a wide range of metrics such as prescriptions, lab results, race/ethnicity, gender, and income and, more recently, they’ve come to include data collected on our fitness devices and social media posts.
But, the misuse – whether unintentionally or otherwise – of personal heath data and information can lead to feelings of discrimination, an encroachment on privacy, and even a loss of trust in our health care system.
Back in 2002, on the Senate floor, I stated: “Scientific advances hold the promise of higher...