STAT November 2, 2023
Over the past five years, two unique federal efforts have collected the health records of millions of Americans. They’ve assembled billions of clinical observations, medication logs, lab results, and more with the goal of supercharging public health research.
Now, their dramatically different approaches to data sharing are coming together to put citizens’ real-world health information to work.
In October, the National Institutes of Health announced a $30 million grant to establish the Center for Linkage and Acquisition of Data, a new resource for the expansive All of Us research program. For the most part, the program’s data is contributed by its intentionally diverse participants, who fill out lengthy questionnaires and consent for their records to be shared with the program....