MedCity News January 25, 2026
I lived for nine years with ALS while navigating a healthcare system that routinely obscured my own medical reality. But I know that pain is only amplified for individuals without medical expertise like mine.
I first thought I had ALS while rushing to a meeting, and noticing my right leg was acting sluggish. As a retired physician and pharmaceutical executive, I immediately recognized the signs. After my meeting, I called my wife and told her my suspicions.
I was right; doctors formally diagnosed me three months later, in December 2015.
Like all rare diseases, my journey since then has been long and arduous. The symptoms gradually worked through my body, and I have used a wheelchair for many...
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