Health Affairs December 1, 2024
Jennifer Beard

Abstract

A public health professor and her mother failed to receive long-term care support from the health care system when they needed it most.

Everyone in my mom’s hospital room was looking in my direction. I glanced over my shoulder to see whether someone was behind me. No, it was me they were looking at. Mom was being released after a three-week stay with what amounted to a feeding tube. The hospital staff were expecting me to oversee her daily care. A natural assumption, but our situation was complicated.

Mom lived alone in Ohio. I live in Boston, where I am a professor. Fourteen months earlier, my father and brother had died two days apart. We had no other relatives....

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