Tincture August 22, 2018
2018 will be the year of data privacy, security, and transparency headlines.
The Facebook and Cambridge Analytica data scandal sparked a public awareness of the ethical standards and data use practices of companies with power. The most recent headlines of 23andMe’s partnership with GlaxoSmithKline generated outcries from many patients who are literally sick and tired of having their data taken advantage of and utilized for everyone else’s profit.
Patients asked:
“What other companies are anonymizing my protected health information (PHI) for commercial purposes?”
“Is my hospital, doctor, or pharmacy selling my anonymized data? How can I look that up?”
“If a company is using my data for profitable purposes, why am I not getting compensated for the access to...
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