pharmaphorum February 25, 2019
Blockchain could revolutionise the way patients think about their clinical data, allowing them to control who uses it and receiving financial rewards for participating in trials. Richard Staines spoke to Jeanne Barnett, founder of the website CysticFibrosis.com and blockchain advocate, about this potential new paradigm for clinical research.
It’s easy for patients with serious diseases to feel like they have been hit with a perfect storm, particularly in the US where they must often pay for part or all of their care for themselves, as well as contending with the debilitating symptoms of their condition.
Finding ways for patients with diseases such as cystic fibrosis (CF) to make a living for themselves is therefore a priority for families who are...
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