Politico July 15, 2019
Hospital executives, with some support in Congress, are lobbying for more regulation to protect health information from unscrupulous data mongers. But HHS is pushing forward with rules that leave that responsibility in patients’ hands.
As federal rule-makers grapple with making patient data more easily shareable, some health leaders fear that their actions could lead to a proliferation of apps selling or exploiting medical data. They worry that patients are likely to sign away their rights to data — perhaps including detailed family histories — without realizing what they’re doing.