MedPage Today May 13, 2024
There’s nothing more disheartening than seeing patients for the first time and knowing, had they come to me earlier, there may have been management strategies to help delay progression of their disease. As a Black physician, I am keenly aware of cultural tendencies in my community not to discuss or disclose to others, even family members, health issues one might be experiencing. I have seen this firsthand as a nephrologist in patients diagnosed with autosomal dominant polycystic kidney disease (ADPKD) — particularly in patients of color. While ADPKD is a rare disease, it is the most common genetic kidney disorder affecting over 140,000 adults in the U.S.
ADPKD causes fluid-filled cysts to form in the kidneys that multiply and enlarge...
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