Public More Protective Of Their Health Information Than Their Biospecimens

In the ongoing debate about whether biospecimens should be covered by human subjects research regulations, bioethicists at the University of Michigan recently added a critical datapoint in disproving one of the arguments—namely, that the public feels more protective of their biospecimens than their health information. In fact, the opposite is true, according to Kayte Spector-Bagdady, J.D., associate director of the Center for Bioethics & Social Sciences in Medicine at Michigan Medicine.

Writing in a research letter published in JAMA (DOI: 10.1001/jama.2022.9740), she and her colleagues report that a proportionately greater number of people are interested in notification if their health information will be used than if their biospecimen will be, and this is particularly true if...

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