Health Affairs October 28, 2022
Cason Schmit, Brian N. Larson, Hye-Chung Kum, Charles Curran

The American Data Privacy and Protection Act (ADPPA) is widely considered the best opportunity in a generation for comprehensive federal privacy legislation. The future of population health informatics hinges on public health professionals’ involvement in the debate over new privacy laws such as the ADPPA. The 2017 World Health Organization (WHO) Guidelines on Ethical Issues in Public Health Surveillance provide excellent guiding principles to identify and communicate public health needs and priorities in proposed privacy legislation. Carefully crafted protections could establish a new social contract: When an individual contributes data to help their community, that data will not be used against the individual.

First and foremost, public health stakeholders must speak up to ensure that any new law does no...

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Topics: Govt Agencies, Healthcare System, Population Health Mgmt, Privacy / Security, Public Health / COVID, Regulations
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