Health Affairs October 12, 2022
Children with medical complexity (CMC) represent a small but growing population and a disproportionate amount of pediatric health care costs. While exact definitions of CMC continue to evolve, prior studies estimate CMC to represent fewer than 1 percent of children and more than 30 percent of pediatric health care costs. Broadly, CMC have at least one complex chronic condition; severe functional limitations, often requiring technology dependence; increased health care service needs; and increased health care costs. The prevalence of CMC continues to grow as life-saving advances in medical technology have enabled the survival of many with childhood-onset diseases.
Unfortunately, the health care system and supporting policy infrastructure have not kept pace with the needs of CMC and their families. CMC...
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