Becker's Healthcare June 7, 2021
Despite there being patients who struggle to get access to their complete health records, their data often is shared with insurance companies, pharmacies and big tech without them even knowing, according to Kenneth Mandl, MD, and Eric Perakslis, PhD.
In a June 5 perspective article published in The New England Journal of Medicine, Dr. Mandl, director of the computational health informatics program at Boston Children’s Hospital, and Dr. Perakslis, chief science and digital officer of Durham, N.C.-based Duke Clinical Research Institute, explored the issues surrounding patient data privacy and sharing.
Drs. Mandl and Perakslis wrote that some EHR companies incorporate patient data into services like clinical decision support or matching patients to clinical trials. While HIPAA regulates how...