STAT July 31, 2024
The BIOSECURE Act, now rolling through Congress, aims to protect the DNA data of Americans from companies with perceived national security risks. That is a noble goal. But the legislation’s misguided approach would single out a small number of companies, including the California-based company I founded in 2005, Complete Genomics, despite the fact that we have no access to such data. It would also let many companies with large volumes of DNA data sell or transfer this data without any legal protections.
Personal DNA data is some of the most sensitive data humans now possess. It contains a blueprint of who individuals are, from their hair and eye color to clues about diseases that may one day affect their lives....
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