HIT Consultant December 10, 2025
For children with special health care needs, the line between stability and crisis is razor-thin. A quiet day at home can quickly spiral into an unplanned hospital admission. Even during moments of calm, families live with constant anxiety that a small change in condition could trigger the next emergency.
It shouldn’t be that way.
Time at home should be safe and supported, not a fragile pause between hospitalizations. Yet today’s healthcare system still defaults to crisis response, especially for children with special healthcare needs. That’s largely because families face persistent barriers to access, limited resources and, too often, a lack of recognition as trusted partners in care.
20% of U.S. children – approximately 14.5 million – have special health care...
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