Medical Xpress September 9, 2024
Children who were diagnosed with a chronic condition at an early age face challenges that go beyond their physical health. Diseases like sickle cell have an especially stressful impact on not just the patient, but their families and caregivers as well.
Sickle cell disease causes severe and unpredictable pain, intense fatigue, frequent infections that lead to prolonged hospitalizations, frequent appointments and missed school and social events.
In turn, the disease can have a detrimental effect on the patient’s mental health; these stressors can include being worried about the long-term effects of their disease on their body, burdensome physical symptoms including significant pain crises and fatigue, trauma of frequent visits to the hospital and potentially the emergency room and feelings of...
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