CHCS October 26, 2023
Transforming pediatric care to be more holistic, family-centered, and equitable takes a concerted effort, including among providers, caregivers, health systems, payers, policymakers, and other interested stakeholders. But youth voices — often overlooked — also need to be central to these efforts. As the ones experiencing the care first-hand, young patients’ perspectives can inform transformation efforts in critical and nuanced ways that others can miss.
To learn how to engage youth voices more effectively, the Center for Health Care Strategies (CHCS) recently spoke with Sneha Dave, founder and executive director at Generation Patient, a global organization that supports youth with chronic and rare conditions in advocating for their needs while navigating health care systems. Sneha shared her perspectives for empowering youth...