HIT Consultant January 15, 2025
Muscular Dystrophy (MD) refers to a group of rare genetic conditions that cause progressive muscle weakness and degeneration in patients. Some forms of MD, such as Duchenne Muscular Dystrophy (DMD), can be life threatening to heart and respiratory functions.
But recent research found that among 3,661 U.S. patients with Muscular Dystrophy, only 33% of those with Duchenne and 12% of those with Becker Muscular Dystrophy – a similar but milder and later-onset MD condition – have previously participated in a clinical trial.
Many patients are simply unaware of clinical trials. And understandably, as Muscular Dystrophy patients face significant challenges requiring extensive rehabilitation and medical appointments, the demands of participation in clinical trials can simply be too overwhelming given how...
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