HealthExec April 19, 2024
A hearing by the House Energy and Commerce Subcommittee on Innovation will be held Wednesday to discuss new legislation to protect patient privacy, giving Americans the authority to access and delete personal data being housed by companies.
The bipartisan American Privacy Rights Act (APRA) is written to give patients property rights over much of their data. While the legislation is far from finalized and has only just been drafted, ARPA would specifically give consumers control over data that falls outside of the purview of the Health Insurance Portability and Accountability Act (HIPAA).
While that excludes a lot of data, such as provider medical records, it would cover the growing amount of data from smartphone apps, consumer health devices, chatbots, webforms...