MobiHealth News March 5, 2024
An Australian charity has recently opened up its wealth of IBD data for IBD R&D worldwide.
Australia-based not-for-profit organisation Crohn’s Colitis Cure (CCCure) has recently launched subscription-based access to its registry of data on patients dealing with inflammatory bowel diseases.
The IBD-focused charity claims to have one of the world’s largest databases of real-time patient-reported and clinical data on IBD, including Crohn’s disease, ulcerative colitis, and IBD-undetermined.
WHAT IT DOES
Its clinical management system, Crohn’s Colitis Care (CCCare), features IBD-specific EMR that facilitates care documentation in near real-time. Holding the largest structured dataset in Australia, it has approximately 300 clinical users and 14,500 patient records, representing over 45,000 clinical encounters and about 30,000 patient years. Introduced in 2018, the EMR...
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