Health Affairs February 4, 2025
Editor’s Note
This article is part of a Health Affairs Forefront series on “The Future of Sickle Cell Disease Research and Care” with support from the American Society of Hematology. The articles in the series are independently reviewed and edited by Health Affairs Forefront.
Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.
Individuals living with SCD are highly engaged with the health care system, starting from the beginning of their lives and continuing throughout their childhood and well into adulthood. Children with SCD may start taking penicillin from as early as six months old, teenagers may need care to...
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