Forbes March 11, 2020
A new study out today in PLOS ONE surveyed public attitudes to genomic databases in 2,020 Americans, finding that a mere 11.7% of participants were willing to donate their DNA freely. Instead, 50.6% of participants expected a payment in compensation, while 37.8% would not donate their personal genomic data for any price.
Most individuals are willing to donate their genomic data indefinitely to academic biobanks and are comfortable with the privacy protections in place. This public willingness to contribute DNA has led to the development of large-scale genomic databases, leading to critical advances, such as the identification of historical remains in unmarked graves.
But how have public attitudes changed in light of recent developments, including increasing privacy risks and the...
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