Forbes September 24, 2024
Michael L. Millenson

The patient activists and their supporters are facing away from the camera, the focus on the colorful images on the backs of their jackets. Each, hand-painted by patient activist Regina Holliday as part of her Walking Gallery, told a personal story of the wearer.

The gathering was at a reception hosted by AcademyHealth in conjunction with Health Datapalooza and at the same time as World Patient Safety Day. It symbolized events that over several days began to feel like a turning point in the power of the patient voice in health policy. Different strands of patient activists interacted in ways that hadn’t happened before, while the relationship with federal officials also felt significantly different.

“What we’re starting to see is...

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