PYMNTS.com April 17, 2025

A trio of lawmakers want answers from 23andMe about the security of its customer data.

In a letter to the bankrupt genetic testing service Thursday (April 17), members of the House Committee on Energy and Congress expressed concerns that this data could be compromised following a sale.

The letter from Rep. Brett Guthrie of Kentucky, Rep. Gus Bilirakis of Florida and Rep. Gary Palmer of Alabama said that generally speaking, direct-to-consumer firms such as 23andMe are not covered by the Health Insurance Portability and Accountability Act (HIPAA).

“Given the lack of HIPAA protections, the patchwork of state laws covering genetic privacy, and the uncertainty surrounding what happens to customer information should a sale of the company or customer data transpire,...

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Topics: Congress / White House, Govt Agencies, Healthcare System, Pharma / Biotech, Precision Medicine, Privacy / Security
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