HIT Consultant March 1, 2023
Clinical research is only as good and thorough as the data that’s available — and we need to do a better job of making that data accessible for researchers.
Unfortunately, the majority of clinical data is based on the same clinical sites and makes conclusions off a limited range of data points. Clinical trials often exclude minorities, rare disease subtypes and other underrepresented populations.
Changing the way we gather and share clinical data isn’t easy. Hospitals, biobanks and other institutions have been entrusted with patient data. As a result of that stewardship, patient privacy is always top of mind when they weigh the delicate balance of data sharing for innovation and protecting data.
Large institutions don’t always have robust...
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