Physicians Practice August 10, 2022
Increased access to patient-centric data sources such as electronic health records, patient reported outcomes, claims data, and genomic data is driving a renewed interest in patient registries as a potential nexus for a more holistic view of the patient experience.
Not-for-profit healthcare organizations such as medical special societies (MSSs) and patient advocacy organizations manage vital data registries about patients and providers for specific research, quality, and educational purposes. However, given the limited scope of their registries, they often fail to fully address broader organizational and research needs.
Shifting market conditions, particularly a changing regulatory environment and a movement towards patient centric data ownership, are driving an increased supply and demand for health data that can provide more comprehensive views of...
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