EHR Intelligence August 30, 2019
– Most patients are comfortable with sharing their EHR data and biospecimens for research purposes, but may have sharing preferences based on researchers’ affiliations and specific data items, according to a study published in JAMA Network Open.
Researchers noted that some legislation regulates the reuse of EHR data and biospecimens so that organizations can share de-identified and identified data sharing, unless the patient explicitly denies the use of data for all purposes other than direct patient care.
“This all-or-nothing option is problematic because, alerted by recent high-profile cases, the increasing awareness among the general public regarding inappropriate reuse of personal data without explicit user consent may markedly change patients’ attitudes toward secondary use activities that involve their...
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