Lawmakers discuss push for rare disease prevention, support

Lawmakers on Friday pushed for improving the production and access of lifesaving drugs for rare diseases at The Hill’s Improving Rare Disease Diagnostics & Care event.

Rep. Rodney Davis (R-Ill.), whose wife suffered from colon cancer and Lynch syndrome, said rare disease prevention is personal for many lawmakers.

“There are so many people that I have met over my career in Congress whose families have been impacted by so many of those thousands of rare diseases and this is personal to all of us,” Davis said during the event Friday, which was sponsored by AstraZeneca Rare Disease and moderated by The Hill’s contributing editor Steve Scully.