AJMC August 15, 2022
Adam Mariano, Esq, MSPH

How can better use of patient data improve health equity? Adam Mariano, Esq., MSPH, senior director, Product and Strategy, Integrated Health Practice at IQVIA, discusses with Evidence-Based Oncology TM (EBO) how the changing landscape in data ownership could allow greater use of data from groups who have historically been poorly represented in clinical trials. Changes brought on by the 21st Century Cures Act1 and the Patient Access Rule2 create an important role for patient organizations, Mariano said.

EBO: What is the role of patient organizations in obtaining data?

Mariano: The change in data ownership in the United States being driven by the Cures Act and the Patient Access Rule offers patient organizations a real opportunity to educate patients about their...

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