Health Care Costs for Patients With Rare Disease Greater Than Previously Estimated

AJMC October 22, 2021
AJMC Staff

Health care costs are 3 to 5 times greater for people with rare diseases compared with those without, according to a new study.

A retrospective study of medical and insurance records indicates health care costs for people with a rare disease have been underestimated and are 3 to 5 times greater than the costs for people without a rare disease, according to a study pubished Thursday in the Orphanet Journal of Rare Diseases.

The study, led by the National Institutes of Health’s National Center for Advancing Translational Sciences (NCATS), provides new evidence of the potential impact of rare diseases on public health, suggesting that nationwide medical costs for individuals with rare diseases are on par with those for cancer and...

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