Features to Build Consumer Trust in Patient Data Sharing

Patient Engagement March 3, 2023
By Sara Heath

Consent, transparency, consumer oversight, and the ability to delete data, plus agreeing with the intended use of patient data, help build trust in patient data sharing.

Patients are interested in sharing their own medical information, so long as that patient data sharing comes with features like informed consent, transparency, and consumer oversight, according to a new paper in JAMA Network Open.

These findings are important as more medical research hinges on patient opt-in for health data sharing. The bevy of data patients generate simply by interacting with their own health and well-being—clinical data, wearable data, information from social media, and data gleaned from mobile apps—can all be valuable to improving patient and population health, the researchers said.

But that movement...

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