AJMC September 30, 2022
There is wide variation in the governance over research participant pay, and with rapid advances in technology enabling trial access, industry should step up and pay patients what they are worth, says Gunnar Esiason, a patient advocate living with cystic fibrosis.
Clinical trials do not exist without us, so we need to demand more from them.
I have cystic fibrosis (CF), a rare genetic condition that was historically known as a childhood disease. Today, CF is anything but that, and it’s due in large part to the community’s willingness to rally around clinical trial programs. Most people I know with CF have participated in at least 1, if not several clinical trials. I’ve been in a handful myself.
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