Healthcare IT News October 28, 2020
Nonprofit leaders hope that researchers will be able to use the platform to share and access currently siloed patient information.
Epidermolysis bullosa, or EB, is a family of rare skin diseases that affects about 500,000 people worldwide. People with mild forms of EB may experience their disease as largely an inconvenience, while those with more severe forms can have dramatically shortened life expectancy as a result.
There is currently no cure for EB. But Michael Hund, CEO of EB Research Partnership, told Healthcare IT News that “because it’s caused by one genetic mutation, this gives us a solvable problem. We believe that this is a solvable problem.”
That belief, Hund said, drove EBRP to team up with Amazon Web Services...